Ted Kennedy, the 3rd longest-serving senator in history, was diagnosed with a cancerous brain tumor in May, 2008 and underwent surgery and a grueling regimen of of radiation and chemotherapy. So by my calculations he survived 15 months after diagnosis. Cancer is no respector of people.
I met another colon cancer victim - (is that the right word? - what do you call us?) at the hospital yesterday. He is 42 years old. He had no idea he had it until it was too late and into stage 4. It has spread to his liver. He is messed up bad - just like I am. But you know what he said to me? He was grateful it hadn't spread to his brain. Wow. That set me back a little in my thinking. But what is this at age 42? How do you prevent this? Who would thing you should get colonoscopies starting at age 40?
So it brings one up short thinking about all this - survival. What a word. Enduring under adverse conditions is a dictionary definition that I'll go with. So I looked up cancer surviors on-line and found lots of web sites. Becoming a cancer survivor is the greatest challenge of my life. I'll try to do what I can. And trust the Lord for the rest.
My prayers go out to the Kennedy family and all others who have suffered from this horrible disease. My prayer is that God raises up scientists that can discover cures and preventions. What a field to go into. Are we challenging our youth in highschool to target becoming research scientists in this field? I hope so.
Stay tuned - Gary
Wednesday, August 26, 2009
Tuesday, August 25, 2009
Chemo Day Tuesday 8/25/09
This is one of those reflective days. I woke up strong. And tired of being a victim. I showed up at the hospital at 8:30 am to get the blood work done and finally got out around 2:30 pm. I got smart this time and took the naseau pill as soon as I got home. Other than my fingers feeling like needles I am doing ok so far.
Confound it all - the nurse called to say I didn't qualify for the fatigue study because that particular study is only for patients that are taking "curative treatment". So what I am I taking - obviously the "non-curative" treatment. Hmmpphh. Now I am really starting to get irritated. That's a good thing in my mind. If I am starting to get cranky about being a victim, tired of the talk about "can't be cured", and strong enough to get that attitude of "I'll show you, just get out of my way because here I come" going then I know I am getting better.
We finally figured out where we can get a brace for my foot. Leah was home this weekend and twice I stubbed my toes hard on the floor - ouch - that hurt - because the foot dropped and I forgot to pick it up. I doubt I wear it in the house but it sure would be nice to not have to take the cane on my walks. It makes me feel like an old man - and I don't like the way people look at me. Time to toughen up.
I sent Sandy on a hamburger run. For some reason a good old hamburger and fries sounds good tonight. With some of the Orange Crush Leah got for me. Hoorah - let's eat.
Stay tuned - Gary
Confound it all - the nurse called to say I didn't qualify for the fatigue study because that particular study is only for patients that are taking "curative treatment". So what I am I taking - obviously the "non-curative" treatment. Hmmpphh. Now I am really starting to get irritated. That's a good thing in my mind. If I am starting to get cranky about being a victim, tired of the talk about "can't be cured", and strong enough to get that attitude of "I'll show you, just get out of my way because here I come" going then I know I am getting better.
We finally figured out where we can get a brace for my foot. Leah was home this weekend and twice I stubbed my toes hard on the floor - ouch - that hurt - because the foot dropped and I forgot to pick it up. I doubt I wear it in the house but it sure would be nice to not have to take the cane on my walks. It makes me feel like an old man - and I don't like the way people look at me. Time to toughen up.
I sent Sandy on a hamburger run. For some reason a good old hamburger and fries sounds good tonight. With some of the Orange Crush Leah got for me. Hoorah - let's eat.
Stay tuned - Gary
Monday, August 24, 2009
Saturday Morning
I won't share the details but from the time I got up yesterday until the time I went to bed their were things going on with my body that were new and scary. Things I hadn't seen before. All night I worried about what today would bring. When I got up, I was afraid to start the normal morning routines. I didn't want to see and understand that things were worse.
Life is so fragile. Hope is so strong. As long as I had hope that I was getting better I was able to plan and look to the future. But with that gone I just crashed in my spirit. I don't want to die today. Or tomorrow. Or next week. I want to push it back, out of my mind, and laugh instead of cry.
Thank you Lord for one more day. Now the tears are tears of joy. Its time for coffee. And the paper. I'll wait for the sun to come up. And it will be good.
Shock Treatment: Friday, Aug. 21,2009
He said it wouldn't hurt. But by the time he figured out that the electrical signal from my right knee to my foot wasn't getting through (must be a short circuit I guess) he did the only thing he could do - crank up the amperage (volts or whatever was on the end of the dial) and shoot me with a good jolt of electricity. Ouch. That one got my attention. It got my leg's attention too because it started spasms on its own - jerking and flopping around like a fish out of water.
It was supposed to be simple - just a little neurological test with electricity and needles. So after the guy with the electricity got done shocking me (and the good leg too) he already knew there was a problem. Well, I knew their was a problem too. Then the doc came in with his long needle (it won't hurt....much....). And after the doc got done sticking the needle and humming and talking to himself and occasionally asking me if I was doing ok (sure - I sweat like this all the time doc) he agreed - there is a problem.
In laymen's terms the nerve that controls the foot ain't workin' from my knee down. And there is some minor damage to my good leg in the same areas. In a couple of weeks we find out the official diagnosis but for now we're sticking to the story that its a side effect of the chemo.
The good news is I was strong enough to be gone from the house for 11 hours today. And we ate out twice with family and friends (I highly recommend the double fried chicken with white gravy and mashed potatoes with white gravy at Cracker Barrel). What's it going to do - kill me? Ha!
We walked a couple of miles yesterday and I slept the night through. Great. Today I sat down on a friends couch in the afternoon and dropped right off to sleep. But don't we all want our afternoon naps?
So I am enjoying this non-chemo week watching the rain, making plans with my wife for the future (wow - I said it - we really are starting to make plans for the future so I must be feeling better).
Stay tuned - Gary
It was supposed to be simple - just a little neurological test with electricity and needles. So after the guy with the electricity got done shocking me (and the good leg too) he already knew there was a problem. Well, I knew their was a problem too. Then the doc came in with his long needle (it won't hurt....much....). And after the doc got done sticking the needle and humming and talking to himself and occasionally asking me if I was doing ok (sure - I sweat like this all the time doc) he agreed - there is a problem.
In laymen's terms the nerve that controls the foot ain't workin' from my knee down. And there is some minor damage to my good leg in the same areas. In a couple of weeks we find out the official diagnosis but for now we're sticking to the story that its a side effect of the chemo.
The good news is I was strong enough to be gone from the house for 11 hours today. And we ate out twice with family and friends (I highly recommend the double fried chicken with white gravy and mashed potatoes with white gravy at Cracker Barrel). What's it going to do - kill me? Ha!
We walked a couple of miles yesterday and I slept the night through. Great. Today I sat down on a friends couch in the afternoon and dropped right off to sleep. But don't we all want our afternoon naps?
So I am enjoying this non-chemo week watching the rain, making plans with my wife for the future (wow - I said it - we really are starting to make plans for the future so I must be feeling better).
Stay tuned - Gary
Tough Days: Sun, Aug 16, 2009
So, I wonder, do I really dare to write on the blog what its really like when I have a chemo week? We all want to hear the good news. But I am beginning to understand that when they hook me up like they did Tuesday for the chemo that its going to be a tough week. Day 2 is always the best because of the steroids. Day 3 when I get unhooked from the pump I am feeling pretty puny. And tired of being sensitive to the cold - no milk, cold potato salad or anything like that.
But then there is Day 4. Like yesterday. The fatigue sets in and I sleep then sleep some more. We had friends come and we went out for lunch. And then the fatigue sets in and I can't keep going. Its a drain on Sandy and friends (Sandy says I should not say this because its not a drain - but I worry that it is so I'll leave it in...). Then last night I escaped! Yup! I had a flash of desire for food at 9:30 pm last night. Sandy had gone to bed. And I got in the car and went to Dillons! Whohoo! But I forgot about the side effects of the chemo - and I reached my hand into the dairy case that had the hot dogs - big, plump hot dogs is what I wanted - and my fingers felt like they had been frozen with frostbite. Ouch. I grabbed the package and tossed it in the basket. Then made my way down to the buns. By the time I got to the check out counter I was wiped out and beginning to wonder if I could make it back.
And that's when I spotted it - outside - a pop machine. And at the bottom of the list was ORANGE pop for 35 cents! I dug out 50 cents and snagged me a cold pop and then OUCH! I couldn't hardly hold the can in my hand. I made it home and fixed my hot dog. Lots of mustard. And two whole swigs of pop. Ahhh - they call that living the good life don't they!
I wonder - do I ever tell anyone about the dark mornings? The depression that sets in because I can't move? And do? The exhaustion that keeps me glued in my seat while I sip coffee and stare out at the trees and birds? Sandy and I spent 2 hours this morning just sitting and talking. It was raining outside. And quiet inside. What a great time. I'm glad for the quietness sometimes.
I fell asleep again this morning after getting exhausted going out to Walmart. How can that be? A simple thing you would think - its not a marathon or anything like that. But I'll do what I can - and then sleep. And when I wake up - we'll hope its better. As my brother reminded me last night - when I am whipped with the chemo and its effects - that means its working. Gosh I hope so.....
Stay tuned - Gary
But then there is Day 4. Like yesterday. The fatigue sets in and I sleep then sleep some more. We had friends come and we went out for lunch. And then the fatigue sets in and I can't keep going. Its a drain on Sandy and friends (Sandy says I should not say this because its not a drain - but I worry that it is so I'll leave it in...). Then last night I escaped! Yup! I had a flash of desire for food at 9:30 pm last night. Sandy had gone to bed. And I got in the car and went to Dillons! Whohoo! But I forgot about the side effects of the chemo - and I reached my hand into the dairy case that had the hot dogs - big, plump hot dogs is what I wanted - and my fingers felt like they had been frozen with frostbite. Ouch. I grabbed the package and tossed it in the basket. Then made my way down to the buns. By the time I got to the check out counter I was wiped out and beginning to wonder if I could make it back.
And that's when I spotted it - outside - a pop machine. And at the bottom of the list was ORANGE pop for 35 cents! I dug out 50 cents and snagged me a cold pop and then OUCH! I couldn't hardly hold the can in my hand. I made it home and fixed my hot dog. Lots of mustard. And two whole swigs of pop. Ahhh - they call that living the good life don't they!
I wonder - do I ever tell anyone about the dark mornings? The depression that sets in because I can't move? And do? The exhaustion that keeps me glued in my seat while I sip coffee and stare out at the trees and birds? Sandy and I spent 2 hours this morning just sitting and talking. It was raining outside. And quiet inside. What a great time. I'm glad for the quietness sometimes.
I fell asleep again this morning after getting exhausted going out to Walmart. How can that be? A simple thing you would think - its not a marathon or anything like that. But I'll do what I can - and then sleep. And when I wake up - we'll hope its better. As my brother reminded me last night - when I am whipped with the chemo and its effects - that means its working. Gosh I hope so.....
Stay tuned - Gary
Praising the Lord: Tuesday, Aug. 11, 2009
I just finished my chemo session and it went well. There is lots of time to think while I sit there doing nothing except being the receiver of a chemical concoction (that I have found out is out of this world expensive). This time I got a little smarter - I took my IPOD and cranked up the worship tunes. A friend gave me CD of Alvin Slaughter's "God Can" album and wow! for those of you who are into praise music this CD is awesome.
We praise the Lord for life and each day we have. We received great news yesterday as we visited with the oncologist. The cancer marker (benchmark) dropped from 461 to 144. Now I don't claim to understand anything except this is great news per the Dr. I talked to the nurse today to try to get a layman's understanding and basically I think this reflects an enzyme count that is put out by the cancer cells. Healthy people who don't smoke should have less than 2.5. My Dr. isn't concerned about the bottom number - he was wanting to see that the number was dropping. That means the treatment is working!
Other reality facts that came up in the discussion (you know, reality is not an option but I prefer fantasy...denial...). For those have asked I am on a Folfox-6 plus Avastin treatment. Its working. I'll continue to see the Dr. every 4 weeks with chemo every 2 weeks. No surgery is scheduled - because for folks that have "too numerous to count cancer spots on the liver" such as I do surgery of the primary site is not considered to be a priority. The only reason surgery would be planned would be if the colon became constricted or I was passing blood. And I am suffering none of those symptoms at this time.
Life expectancy for those who have colon cancer that involves the liver like my case is 2 to 2 1/2 years. Some have made it 5 years. Others of course don't make it 2 years. But the good news is the science of colon cancer continues to evolve at a rapid pace. Of course, we trust the Lord and all the prayers for complete healing.
Now I have some things to do to help the healing along. The Dr. wants me to exercise more - even on the days I have the pump attached to me at home. So Sandy and I will "hit the dusty trail" more now and get the walking routine increased.
We discussed optional opinions and treatments at MD Anderson (Dallas) and National Cancer Institute (Bethseda). Mayo was also discussed. None of those are really an option until I quit responding to the current treatment. And as I understand it at some point (8 months to 1 1/2 years) my body will begin to resist the current treatment and we'll have to switch to a different program.
You see - what I have is "treatable" but not "curable". Hmmm,,,,,that brings a guy up short. It makes me think all kinds of things: selfish bucket list items, grief for failures to accomplish certain dreams, determination to launch a successful new business venture, spiritual goals and people goals. I don't claim to have it all sorted out - because it seems that daily life (financial affairs, health management, family and church activities) is consuming all my energy.
Speaking of energy - I have been asked to join a clinical trial on fatigue. To steal Sarah Palin's colloquialism my response is "YOU BETCHA' ". Sign me up. The fatigue factor is a real drain. I'll think of something I want to do and 1/2 hour later I am still sitting in the chair waiting for the old body to get the message that its time to get moving! So this clinical trail has something to do with ginseng. Nuts, I'll probably get the placebo....
My Dr. recommended the following sites: http://www.uptodate.com/patients/index.html and http://www.cancercenterofkansas.com/
So stay tuned while we figure this out. We have good days and bad days. But the Dr. says I'll be much stronger is 3-4 months. And he said I was much stronger this time (we all realize I was one sick puppy the last time I saw him - that rascally colon cancer sneaked up on me and just about had me on the ropes).
Gary
We praise the Lord for life and each day we have. We received great news yesterday as we visited with the oncologist. The cancer marker (benchmark) dropped from 461 to 144. Now I don't claim to understand anything except this is great news per the Dr. I talked to the nurse today to try to get a layman's understanding and basically I think this reflects an enzyme count that is put out by the cancer cells. Healthy people who don't smoke should have less than 2.5. My Dr. isn't concerned about the bottom number - he was wanting to see that the number was dropping. That means the treatment is working!
Other reality facts that came up in the discussion (you know, reality is not an option but I prefer fantasy...denial...). For those have asked I am on a Folfox-6 plus Avastin treatment. Its working. I'll continue to see the Dr. every 4 weeks with chemo every 2 weeks. No surgery is scheduled - because for folks that have "too numerous to count cancer spots on the liver" such as I do surgery of the primary site is not considered to be a priority. The only reason surgery would be planned would be if the colon became constricted or I was passing blood. And I am suffering none of those symptoms at this time.
Life expectancy for those who have colon cancer that involves the liver like my case is 2 to 2 1/2 years. Some have made it 5 years. Others of course don't make it 2 years. But the good news is the science of colon cancer continues to evolve at a rapid pace. Of course, we trust the Lord and all the prayers for complete healing.
Now I have some things to do to help the healing along. The Dr. wants me to exercise more - even on the days I have the pump attached to me at home. So Sandy and I will "hit the dusty trail" more now and get the walking routine increased.
We discussed optional opinions and treatments at MD Anderson (Dallas) and National Cancer Institute (Bethseda). Mayo was also discussed. None of those are really an option until I quit responding to the current treatment. And as I understand it at some point (8 months to 1 1/2 years) my body will begin to resist the current treatment and we'll have to switch to a different program.
You see - what I have is "treatable" but not "curable". Hmmm,,,,,that brings a guy up short. It makes me think all kinds of things: selfish bucket list items, grief for failures to accomplish certain dreams, determination to launch a successful new business venture, spiritual goals and people goals. I don't claim to have it all sorted out - because it seems that daily life (financial affairs, health management, family and church activities) is consuming all my energy.
Speaking of energy - I have been asked to join a clinical trial on fatigue. To steal Sarah Palin's colloquialism my response is "YOU BETCHA' ". Sign me up. The fatigue factor is a real drain. I'll think of something I want to do and 1/2 hour later I am still sitting in the chair waiting for the old body to get the message that its time to get moving! So this clinical trail has something to do with ginseng. Nuts, I'll probably get the placebo....
My Dr. recommended the following sites: http://www.uptodate.com/patients/index.html and http://www.cancercenterofkansas.com/
So stay tuned while we figure this out. We have good days and bad days. But the Dr. says I'll be much stronger is 3-4 months. And he said I was much stronger this time (we all realize I was one sick puppy the last time I saw him - that rascally colon cancer sneaked up on me and just about had me on the ropes).
Gary
Update: Mon, Aug. 10, 2009
Well, its been 2 weeks since the last chemo treatment. We now know how to identify the side effects - 'chemo brain', sleeping like a baby a the drop of a hat, feeling like your living in a fog. There are some 'good days' (relatively speaking) and then there are the other times when its not so good.
Monday we see the oncologist for the first time since the chemo started. We have some 'fear' because we have lots of questions now after a month of the chemo. What's really going on? Am I getting better or worse? Or are we in a holding pattern? What about life expectancy? I have some choices to make that are going to be customized to the answer to that question. What about quality of life? I feel like a shriveled up prune.
Oh - and now I have to contend with a right foot that just quit working properly after the chemo started. What's up with that? It droops - evidently there is some nerve damage - and if I don't watch it closely I'll do a face plant on the floor. Actually - I did one tonight when we had company. Not cool. But nothings broke.
We've had lots of company - and that is so neat. We enjoy people and visiting is always fun.
So stay tuned - I'll try to get the blog updated after we get some answers tomorrow. I expect I'll have another round of chemo starting Tuesday and you all know by now what that means - I'll be out of commission for awhile. Thanks for all the emails - if I don't get back to you right away its not because I don't want to - I just don't seem to be able to 'drive' like I used to.
Gary
Monday we see the oncologist for the first time since the chemo started. We have some 'fear' because we have lots of questions now after a month of the chemo. What's really going on? Am I getting better or worse? Or are we in a holding pattern? What about life expectancy? I have some choices to make that are going to be customized to the answer to that question. What about quality of life? I feel like a shriveled up prune.
Oh - and now I have to contend with a right foot that just quit working properly after the chemo started. What's up with that? It droops - evidently there is some nerve damage - and if I don't watch it closely I'll do a face plant on the floor. Actually - I did one tonight when we had company. Not cool. But nothings broke.
We've had lots of company - and that is so neat. We enjoy people and visiting is always fun.
So stay tuned - I'll try to get the blog updated after we get some answers tomorrow. I expect I'll have another round of chemo starting Tuesday and you all know by now what that means - I'll be out of commission for awhile. Thanks for all the emails - if I don't get back to you right away its not because I don't want to - I just don't seem to be able to 'drive' like I used to.
Gary
Latest from Wellington, KS: Tues, July 28, 2009
Thanks to all the family and friends that have emailed and left blog comments. These touches are my lifeline. I can't find the words to communicate how deeply moved I am by all the support and prayers.
Its obvious to all this has been a life changing event. Not only have Sandy and I had to deal with learning a new health care regime but we have had to "re-boot" our life plans. And as I have always had as a caveat as the saying goes "Lord willing and the creek don't rise" always has to get tagged on to our human plans.
I crossed another major stage of life this week as I say goodbye to my motorcycle. My brother is coming to get it. He lives very close to the BMW dealer in Savoy, Illinois and I know he will care for this wonderful exotic machine like it was my own. It is no longer safe for me to ride. I have set a personal challenge though - that is to regain health and fitness to the point I can work again. When that day comes, then I can go get another motorcycle. In the meantime I have great memories and am fully engaged with managing our affairs and trying to get healthy.
I have had good feedback about how so many of you enjoy the pictures and I want to thank my daughter Leah and her husband Tim for all the time and effort they are putting into keeping the blog updated. What a great family I am blessed with and I admit to being especially attached to all the grandchildren. Each one is my favorite!
For all my Boeing friends - you'll all be pleased to know (I sure am) that the e-manufacturing patent was awarded and I have the coveted plaque now announcing the award from the US Patent & Trade Office. I reckon that certifies me as a geek! Getting the patent awarded took approximately 8 years.
So on we go with the journey and what is around the next corner I don't know. But I was always all about the adventure - and the stories - so I reckon this qualifies.
Stay tuned - Gary
Its obvious to all this has been a life changing event. Not only have Sandy and I had to deal with learning a new health care regime but we have had to "re-boot" our life plans. And as I have always had as a caveat as the saying goes "Lord willing and the creek don't rise" always has to get tagged on to our human plans.
I have had good feedback about how so many of you enjoy the pictures and I want to thank my daughter Leah and her husband Tim for all the time and effort they are putting into keeping the blog updated. What a great family I am blessed with and I admit to being especially attached to all the grandchildren. Each one is my favorite!
For all my Boeing friends - you'll all be pleased to know (I sure am) that the e-manufacturing patent was awarded and I have the coveted plaque now announcing the award from the US Patent & Trade Office. I reckon that certifies me as a geek! Getting the patent awarded took approximately 8 years.
So on we go with the journey and what is around the next corner I don't know. But I was always all about the adventure - and the stories - so I reckon this qualifies.
Stay tuned - Gary
Chemo Round 2: Mon, July 27, 2009
I just finished chemo round 2. I can tell its in me - a metallic taste in my mouth, tired, tongue a little numb, etc. They said today that day 3 is the hardest. I get steroids each time - its to open up the cancer cells to feed better and then the chemo zaps them. I don't expect to sleep well tonight due to the steroids.
It only took 3 hours hooked up today - now I have the pump and am home. The pump is to kill cancer that grows (divides) at a slower rate than the cancer that they attack with the chemo dumped in me today.
All in all I am supposed to do better on round 2 because the 1st round is supposed to be the toughest. We'll see.
The nurse said cancer is killed (contained) better with chemo when the cancer is advanced and really growing fast. So good - that is my case.
Now I have to rest
-Gary
It only took 3 hours hooked up today - now I have the pump and am home. The pump is to kill cancer that grows (divides) at a slower rate than the cancer that they attack with the chemo dumped in me today.
All in all I am supposed to do better on round 2 because the 1st round is supposed to be the toughest. We'll see.
The nurse said cancer is killed (contained) better with chemo when the cancer is advanced and really growing fast. So good - that is my case.
Now I have to rest
-Gary
New Member of the Family: Wednesday July 22, 2009
Much has happened since our last blog entry. Tim and Leah were able to spend an extended weekend with everyone in Kansas. It was encouraging that Gary was feeling well enough to make the trip to the airport and pick them up with Sandy. Yet this was another rough day for Gary. Gary’s body underwent a lot during the diagnosis and his first treatment, and up to Saturday he had not noticed any signs of improvement.
On Sunday Justin and Tina, Corie and Doug, the kids and Grandma and Grandpa Boone along with Uncle Marion and Aunt Joyce came to Wellington. It was a great day. The family enjoyed spending some quality time together and Gary was seeing the first discernible signs of improvement for weeks. His energy levels were higher and he was able to eat again. On Monday Gary went for his blood work, this was a quick and painless process that shouldn’t hinder his recovery between treatments. He was continuing to see signs of improvement and was encouraged by how much he was able achieve.
Most exciting was the trip to Wichita to see his eighth grandchild Carson Matthew Cook, who was born late Monday morning and was 8lb 9oz and 19”. For Corie this was a major surgery, yet she is recovering well. Carson was having difficulty breathing and the doctors thought there may be a little water in one of his lungs, however after more testing it was confirmed this evening that he actually has pneumonia. The doctors have placed him on a seven day treatment of antibiotics which they are hoping he will respond well to.
There is much to be thankful for, and much to continue to bring before the Lord in prayer. As Gary continues to have good days and bad days, pray that his average health levels would continue to rise and that the good would outnumber the bad. Pray for Corie’s continued healing from her surgery. Pray that baby Carson would recover quickly from his pneumonia and that he would be able to go home healthy soon.
For many this latest trail may seem like one too far, however the Lord is our strength, and it is He who is our ever present help in times of trouble. We covet your prayers and enjoy reading your comments.
On Sunday Justin and Tina, Corie and Doug, the kids and Grandma and Grandpa Boone along with Uncle Marion and Aunt Joyce came to Wellington. It was a great day. The family enjoyed spending some quality time together and Gary was seeing the first discernible signs of improvement for weeks. His energy levels were higher and he was able to eat again. On Monday Gary went for his blood work, this was a quick and painless process that shouldn’t hinder his recovery between treatments. He was continuing to see signs of improvement and was encouraged by how much he was able achieve.
Most exciting was the trip to Wichita to see his eighth grandchild Carson Matthew Cook, who was born late Monday morning and was 8lb 9oz and 19”. For Corie this was a major surgery, yet she is recovering well. Carson was having difficulty breathing and the doctors thought there may be a little water in one of his lungs, however after more testing it was confirmed this evening that he actually has pneumonia. The doctors have placed him on a seven day treatment of antibiotics which they are hoping he will respond well to.
There is much to be thankful for, and much to continue to bring before the Lord in prayer. As Gary continues to have good days and bad days, pray that his average health levels would continue to rise and that the good would outnumber the bad. Pray for Corie’s continued healing from her surgery. Pray that baby Carson would recover quickly from his pneumonia and that he would be able to go home healthy soon.
For many this latest trail may seem like one too far, however the Lord is our strength, and it is He who is our ever present help in times of trouble. We covet your prayers and enjoy reading your comments.
Chemo Week 1: Friday, July 17, 2009
I (Leah) stayed at my parents’ until early Tuesday morning before heading back to Chicago, but Tim and I are headed back tomorrow morning for a little longer stay. This next week brings a new family member: Corie is scheduled to have her C-Section on Monday. We look forward to welcoming this new little one, and we will be sure to post pictures!
It is wonderful that we still have things to celebrate during this difficult time. Please remember to pray for the whole family as we go back and forth to the hospital with Corie and home with my Dad. A few other things to pray for would be continued pain management, for my mom as she sorts through ludicrous amounts of paperwork, and for Corie as she has her baby on Monday.
We thank you again for your prayers. I want to just let you know that we will be updating this blog around once a week, or as new or important things happen. If you want to contact us, please feel free to email, call, send a card, or just visit!
Leah
Chemo Week 1
Friday, July 17, 2009
Add a Comment
5 Comments
--------------------------------------------------------------------------------
Sunday, July 19, 2009 - 05:44 PM
Janice
It is good to see you smiling Gary, but I have to say I do NOT like the T shirt!! Snakes are definitely not my favourite things! It was good to speak to Sandy on Friday. We continue to pray that the chemo will go well and have good results. Looking forward to seeing pictures of the new baby - give our love to Corie and Doug.
--------------------------------------------------------------------------------
Monday, July 20, 2009 - 07:26 AM
Anonymous
Gary and Sandy,
Have been following your progress. You have lots of support and prayers. That is good. Stay positive and you will whip this illness.
Trish and I are in MN working on the cabin. I won't be back until the end of September, so will see you then.
Looks like we are both expecting grandchildren next Monday. Jamie and Liesel are expecting their first son on Monday the 27th.
Stay strong and positive,
Jim and Trish
--------------------------------------------------------------------------------
Tuesday, July 21, 2009 - 12:27 PM
Kenny Allen
Step by Step, one breath at a time...fixing our eyes on Jesus, the Author and Perfector of our faith...fight the good fight
(I like the snake t-shirt)
Pressing on,
Kenny
--------------------------------------------------------------------------------
Wednesday, July 22, 2009 - 12:01 PM
Anonymous
Hi! Just wanted you to know I am praying for you.
(and I don't like the shirt either :) )
--------------------------------------------------------------------------------
Wednesday, July 22, 2009 - 06:59 PM
Anonymous
Now that's my BIG brother! A true WARRIOR of God! And as far as the shirt? If you like it (and you must as you're wearing it) then it's alright with me. Love you, Marianne
--------------------------------------------------------------------------------
Add a Comment
Chemo Day 1: Monday, July 13, 2009
Dear Friends and Family,
I am writing this to you from the Cancer Center in Wellington. We are getting Gary’s first round of chemotherapy today. It’s scary since we do not know what to expect with how he will feel afterwards, but we are thankful to start treatment. The nurses have been friendly and informative, but the treatments they are pumping into Gary’s body, and the potential side effects are crazy!
We have had a lot of wonderful visits from our friends this past week. Some highlights were the Christian Motorcycle Association (CMA) local leaders coming over last Thursday and Gary and Sandy’s Pastors and Home Group Bible study at their church coming over on Sunday.. There were about 25 people at our house for lunch, a worship time, and a time for prayer over Gary. This meant a lot to the family and we thank you!
We have also had a number of individuals come, and we can’t believe the wonderful support we have had from you all. A special thanks to Tony and his family coming all the way from Texas to visit Gary!
We have been trying to make sure that Gary is getting the nutrients that he needs. The Doctors told us that at this point, the most important thing we can do is get food down him, any food…. So whatever Gary has a taste for we try to oblige. This includes such wonderful meals as pork & beans and Mac & Cheese!
I (Leah) have been down in KS since Saturday, and it has been wonderful being able to be here with my mom and dad. I just want to mention a few prayer requests to you now that he has started Chemo:
1.Please pray that the potential side effects the nurses warned us of would not be severe. This has the potential to make Gary very sick, but it does not affect everyone the same way.
2.The chemo will affect Gary’s immune system, so he needs to stay away from germs. Pray that he wouldn’t get any bugs that could cause problems.
3.Continued prayer for Gary, Sandy, and the family for strength during this time.
Romans 12:12 says “Rejoice in hope, be patient in tribulation, be constant in prayer.” We are striving for these things and we ask them for you as well.
Thank you dear friends,
Leah, Gary, and Sandy
Tuesday, July 14, 2009 - 06:39 AM
Anonymous
We continue to stand with you in prayer as start this treatment. You are all much in our thoughts and prayers.
Love Janice and Paul
--------------------------------------------------------------------------------
Tuesday, July 14, 2009 - 07:42 AM
Andrew & Dawn Sanford
Gary, Sandy and Leah, Yo9u are in the front of my mind all day long and I am praying for you. We have made this blog our home page so EVERY TIME we log on to the internet Gary you are the first thing that we see. It is a constant reminder to pray for you and your family to have strength and to be uplifted in Christ's name. I pray that God will give you peace about the future and a joy for everyday.
--------------------------------------------------------------------------------
Wednesday, July 15, 2009 - 02:08 PM
Paul Lister
Hi Gary,
I think we all know that no words are good enough when we are faced by this situation. It's also easy to say that it hasn't taken God by surprise and he only has his best for you. This is of course true but when you're facing the situation it has to be difficult to hang on to this truth.
So I just wanted you and Sandy and the family to know how much you are in our daily thoughts and prayers. Also that we have also made it a matter of prayer at our Church.
I'm sorry that we're so far away. I'd love to just be able to come by and say hi. But as much as we can from 1000's of miles away we feel a bond and a deep love and concern for you and Sandy in the days ahead.
God bless you both
Paul
--------------------------------------------------------------------------------
Wednesday, July 15, 2009 - 04:00 PM
Kenny Allen
Gary & Sandy & family...
Praying the Psalms 5:3 prayer: "Morning by morning, O Lord, You hear my voice. Morning by morning, I lay my requests before you and wait in anticipation." Praying and anticipating the wonderous love of God in Christ expressed in your life...
Pressing on,
Kenny
--------------------------------------------------------------------------------
Friday, July 17, 2009 - 06:45 PM
Danielle Peeples
Hey Leah, Uncle Gary and Aunt Sandy. I just want you to know that I am praying for you all and will continue until you are well. I appreciate everything you have ever done for me and I want you to know that I love you all. We are all thinking of you everyday and are hoping you will be healed soon. Keep praying, because there is strength in numbers When you come to him in two or more, your prayers shall be answered
I am writing this to you from the Cancer Center in Wellington. We are getting Gary’s first round of chemotherapy today. It’s scary since we do not know what to expect with how he will feel afterwards, but we are thankful to start treatment. The nurses have been friendly and informative, but the treatments they are pumping into Gary’s body, and the potential side effects are crazy!
We have had a lot of wonderful visits from our friends this past week. Some highlights were the Christian Motorcycle Association (CMA) local leaders coming over last Thursday and Gary and Sandy’s Pastors and Home Group Bible study at their church coming over on Sunday.. There were about 25 people at our house for lunch, a worship time, and a time for prayer over Gary. This meant a lot to the family and we thank you!
We have also had a number of individuals come, and we can’t believe the wonderful support we have had from you all. A special thanks to Tony and his family coming all the way from Texas to visit Gary!
We have been trying to make sure that Gary is getting the nutrients that he needs. The Doctors told us that at this point, the most important thing we can do is get food down him, any food…. So whatever Gary has a taste for we try to oblige. This includes such wonderful meals as pork & beans and Mac & Cheese!
I (Leah) have been down in KS since Saturday, and it has been wonderful being able to be here with my mom and dad. I just want to mention a few prayer requests to you now that he has started Chemo:
1.Please pray that the potential side effects the nurses warned us of would not be severe. This has the potential to make Gary very sick, but it does not affect everyone the same way.
2.The chemo will affect Gary’s immune system, so he needs to stay away from germs. Pray that he wouldn’t get any bugs that could cause problems.
3.Continued prayer for Gary, Sandy, and the family for strength during this time.
Romans 12:12 says “Rejoice in hope, be patient in tribulation, be constant in prayer.” We are striving for these things and we ask them for you as well.
Thank you dear friends,
Leah, Gary, and Sandy
Tuesday, July 14, 2009 - 06:39 AM
Anonymous
We continue to stand with you in prayer as start this treatment. You are all much in our thoughts and prayers.
Love Janice and Paul
--------------------------------------------------------------------------------
Tuesday, July 14, 2009 - 07:42 AM
Andrew & Dawn Sanford
Gary, Sandy and Leah, Yo9u are in the front of my mind all day long and I am praying for you. We have made this blog our home page so EVERY TIME we log on to the internet Gary you are the first thing that we see. It is a constant reminder to pray for you and your family to have strength and to be uplifted in Christ's name. I pray that God will give you peace about the future and a joy for everyday.
--------------------------------------------------------------------------------
Wednesday, July 15, 2009 - 02:08 PM
Paul Lister
Hi Gary,
I think we all know that no words are good enough when we are faced by this situation. It's also easy to say that it hasn't taken God by surprise and he only has his best for you. This is of course true but when you're facing the situation it has to be difficult to hang on to this truth.
So I just wanted you and Sandy and the family to know how much you are in our daily thoughts and prayers. Also that we have also made it a matter of prayer at our Church.
I'm sorry that we're so far away. I'd love to just be able to come by and say hi. But as much as we can from 1000's of miles away we feel a bond and a deep love and concern for you and Sandy in the days ahead.
God bless you both
Paul
--------------------------------------------------------------------------------
Wednesday, July 15, 2009 - 04:00 PM
Kenny Allen
Gary & Sandy & family...
Praying the Psalms 5:3 prayer: "Morning by morning, O Lord, You hear my voice. Morning by morning, I lay my requests before you and wait in anticipation." Praying and anticipating the wonderous love of God in Christ expressed in your life...
Pressing on,
Kenny
--------------------------------------------------------------------------------
Friday, July 17, 2009 - 06:45 PM
Danielle Peeples
Hey Leah, Uncle Gary and Aunt Sandy. I just want you to know that I am praying for you all and will continue until you are well. I appreciate everything you have ever done for me and I want you to know that I love you all. We are all thinking of you everyday and are hoping you will be healed soon. Keep praying, because there is strength in numbers When you come to him in two or more, your prayers shall be answered
News from the Oncologist: Monday, July 6, 2009
Thank you for your prayers today for the oncology visit. We really like the Oncologist, and feel that we are in good hands at the hospital. The news was not good, however. The Oncologist informed us that the cancer is alarmingly extensive on Gary's liver. Previously we had been concerned about the tumors in his colon as the number one concern, but it appears that the cancer spots on the liver are "too many to count" according to the oncologist. It has spread to the point that surgery on the liver or a transplant is not a viable option.
Gary will be having a P.E.T. Scan at 5:45 am on Wednesday this week to highlight all of the areas in his body with the cancer, however, they will start chemotherapy as soon as the port in his chest has healed a little more, Monday or Tuesday next week. The Chemo will go in 2 week increments, with a 3 hour chemo course one week, a blood test the next, chemo again the next, etc. He will be able to take the courses as an outpatient, so will be able to remain at home in Wellington. The good news is that the chemo they will be giving him should not cause extreme nausea or hair loss, although it will definitely be rough for the first 4-6 weeks. The chemo will hopefully reduce the pain Gary is in, but with the spread as extensive as it is, the Dr. was not optimistic on a complete recovery.
A few things to prayer for would be continual pain management for Gary. A major issue for him right now is that he doesn't want to eat, and when he does, his liver and stomach has a hard time processing the food to come out the other end! Pray that he would be able get the food through his body.
Through this all, our hope and faith remains in the Lord. Sandy has been recently reading out of Oswald Chambers book, My Utmost for His Highest, from the July 5th devotional based on Psalm 37:5 "Commit your way to the Lord, trust also in Him, and He shall bring it to pass".
Chambers writes " Don't plan with a rainy day in mind. You cannot hoard things for a rainy day if you are truly trusting Christ. Jesus said, "Let not your heart be troubled... (John 14:1). God will not keep your heart from being troubled. It is a command--"Let not..." To do it , continually pick yourself up, even if you fall a hundred and one times a day, until you get into the habit of putting God first and planning with Him in mind."
Gary will be having a P.E.T. Scan at 5:45 am on Wednesday this week to highlight all of the areas in his body with the cancer, however, they will start chemotherapy as soon as the port in his chest has healed a little more, Monday or Tuesday next week. The Chemo will go in 2 week increments, with a 3 hour chemo course one week, a blood test the next, chemo again the next, etc. He will be able to take the courses as an outpatient, so will be able to remain at home in Wellington. The good news is that the chemo they will be giving him should not cause extreme nausea or hair loss, although it will definitely be rough for the first 4-6 weeks. The chemo will hopefully reduce the pain Gary is in, but with the spread as extensive as it is, the Dr. was not optimistic on a complete recovery.
A few things to prayer for would be continual pain management for Gary. A major issue for him right now is that he doesn't want to eat, and when he does, his liver and stomach has a hard time processing the food to come out the other end! Pray that he would be able get the food through his body.
Through this all, our hope and faith remains in the Lord. Sandy has been recently reading out of Oswald Chambers book, My Utmost for His Highest, from the July 5th devotional based on Psalm 37:5 "Commit your way to the Lord, trust also in Him, and He shall bring it to pass".
Chambers writes " Don't plan with a rainy day in mind. You cannot hoard things for a rainy day if you are truly trusting Christ. Jesus said, "Let not your heart be troubled... (John 14:1). God will not keep your heart from being troubled. It is a command--"Let not..." To do it , continually pick yourself up, even if you fall a hundred and one times a day, until you get into the habit of putting God first and planning with Him in mind."
Subscribe to:
Posts (Atom)
